Dromm, NYC Council demand more resources for people living with Sickle Cell Disease

UsaNewsOnline.Com Desk, New York City Hall – Feb 27 the New York City Council overwhelming passed Resolution 335A, prime sponsored by NYC Council Member Daniel Dromm (D-Jackson Heights, Elmhurst), calling upon the New York State Legislature to pass and fully fund, and the Governor to sign, A.6493/S.2281.  This legislation would establish eight demonstration programs throughout New York State and one coordinating center to improve the care of sickle cell disease patients and educate about sickle cell trait.
Sickle-cell related conditions highlight health disparities in our system as communities of color are disproportionately affected.  New York falls behind other states in rectifying this problem by fully funding the programs needed to enhance outcomes and quality of life for those with sickle cell disease. Recognizing the need for the state to launch a coordinated effort to tackle this health challenge, Senator James Sanders and Assemblywoman Alicia Hyndman introduced A.6493/S.2281.  With the goals of decreasing morbidity and overall costs, and increasing quality of life, this legislation would create programs to coordinate service delivery, provide genetic counseling, conduct community outreach, promote mental health services, and train health professionals.  In addition, the bills would establish a statewide coordinating center to provide resources and monitor progress.  

“Sickle cell disease is a public health crisis,” said Council Member Dromm. “Thousands of New Yorkers have either sickle cell trait or sickle cell disease. Sickle-cell related conditions highlight health disparities in our system as communities of color are disproportionately affected.  A large effort is needed to meet this serious issue head on and to address the myriad of concerns that have arisen.  I am pleased that the Council has joined this statewide effort—courageously lead by State Senator James Sanders, Assemblywoman Alicia Hyndman and scores of public health advocates—calling upon Albany to make A.6493/S.2281 the law in New York State. Finally, allow me to express my gratitude to Dr. Tom Moulton, who first brought this problem to my attention and who has advocated tirelessly for better treatment for this community.” Press Release.